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Tytuł pozycji:

Priorities for Patient-Centered Research in Valvular Heart Disease: A Report From the National Heart, Lung, and Blood Institute Working Group.

Tytuł :
Priorities for Patient-Centered Research in Valvular Heart Disease: A Report From the National Heart, Lung, and Blood Institute Working Group.
Autorzy :
Lindman BR; Cardiovascular Medicine Division Structural Heart and Valve Center Vanderbilt University Medical Center Nashville TN.
Arnold SV; Saint Luke's Mid America Heart Institute/UMKC Kansas City MO.
Bagur R; Division of Cardiology University Hospital London Health Sciences Centre London Ontario Canada.
Clarke L; Alliance for Aging Research Washington DC.
Coylewright M; Heart and Vascular Center Dartmouth-Hitchcock Medical Center Lebanon NH.
Evans F; National Heart, Lung, and Blood Institute of the National Institutes of Health, Bethesda MD.
Hung J; Cardiology Division Massachusetts General Hospital Harvard Medical School Boston MA.
Lauck SB; Centre for Heart Valve Innovation St. Paul's Hospital University of British Columbia Vancouver British Columbia Canada.
Peschin S; Alliance for Aging Research Washington DC.
Sachdev V; National Heart, Lung, and Blood Institute of the National Institutes of Health, Bethesda MD.
Tate LM; Heart Valve Voice US Washington DC.
Wasfy JH; Cardiology Division Massachusetts General Hospital Harvard Medical School Boston MA.
Otto CM; Cardiovascular Division University of Washington Seattle WA.
Pokaż więcej
Źródło :
Journal of the American Heart Association [J Am Heart Assoc] 2020 May 05; Vol. 9 (9), pp. e015975. Date of Electronic Publication: 2020 Apr 24.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
Język :
English
Imprint Name(s) :
Original Publication: Oxford : Wiley-Blackwell
MeSH Terms :
Cardiac Catheterization*/adverse effects
Citizen Science*
Health Priorities*
Heart Valve Prosthesis Implantation*/adverse effects
Patient Participation*
Patient-Centered Care*
Research Design*
Heart Valve Diseases/*surgery
Decision Making, Shared ; Health Services Accessibility ; Heart Valve Diseases/diagnosis ; Heart Valve Diseases/physiopathology ; Humans ; National Heart, Lung, and Blood Institute (U.S.) ; Perioperative Care ; Postoperative Complications/etiology ; Postoperative Complications/therapy ; Stakeholder Participation ; Treatment Outcome ; United States
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Contributed Indexing :
Keywords: aortic valve*; heart valve*; heart valve surgery*; mitral valve*; patient‐centered care*; shared decision making*; transcatheter valve implantation*
Entry Date(s) :
Date Created: 20200425 Date Completed: 20210310 Latest Revision: 20210310
Update Code :
20210623
PubMed Central ID :
PMC7428554
DOI :
10.1161/JAHA.119.015975
PMID :
32326818
Czasopismo naukowe
Over the past decade, the field of valvular heart disease (VHD) has rapidly transformed, largely as a result of the development and improvement of less invasive transcatheter approaches to valve repair or replacement. This transformation has been supported by numerous well-designed randomized trials, but they have centered almost entirely on devices and procedures. Outside this scope of focus, however, myriad aspects of therapy and management for patients with VHD have either no guidelines or recommendations based only on expert opinion and observational studies. Further, research in VHD has often failed to engage patients to inform study design and identify research questions of greatest importance and relevance from a patient perspective. Accordingly, the National Heart, Lung, and Blood Institute convened a Working Group on Patient-Centered Research in Valvular Heart Disease, composed of clinician and research experts and patient advocacy experts to identify gaps and barriers to research in VHD and identify research priorities. While recognizing that important research remains to be done to test the safety and efficacy of devices and procedures to treat VHD, we intentionally focused less attention on these areas of research as they are more commonly pursued and supported by industry. Herein, we present the patient-centered research gaps, barriers, and priorities in VHD and organized our report according to the "patient journey," including access to care, screening and diagnosis, preprocedure therapy and management, decision making when a procedure is contemplated (clinician and patient perspectives), and postprocedure therapy and management. It is hoped that this report will foster collaboration among diverse stakeholders and highlight for funding bodies the pressing patient-centered research gaps, opportunities, and priorities in VHD in order to produce impactful patient-centered research that will inform and improve patient-centered policy and care.

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