Drogi użytkowniku, aplikacja do prawidłowego działania wymaga obsługi JavaScript. Proszę włącz obsługę JavaScript w Twojej przeglądarce.

Przeglądasz jako GOŚĆ
Zmień bibliotekę
Tytuł pozycji:

Priorities for Patient-Centered Research in Valvular Heart Disease: A Report From the National Heart, Lung, and Blood Institute Working Group.

Tytuł :
Priorities for Patient-Centered Research in Valvular Heart Disease: A Report From the National Heart, Lung, and Blood Institute Working Group.
Autorzy :
Lindman BR; Cardiovascular Medicine Division Structural Heart and Valve Center Vanderbilt University Medical Center Nashville TN.
Arnold SV; Saint Luke's Mid America Heart Institute/UMKC Kansas City MO.
Bagur R; Division of Cardiology University Hospital London Health Sciences Centre London Ontario Canada.
Clarke L; Alliance for Aging Research Washington DC.
Coylewright M; Heart and Vascular Center Dartmouth-Hitchcock Medical Center Lebanon NH.
Evans F; National Heart, Lung, and Blood Institute of the National Institutes of Health, Bethesda MD.
Hung J; Cardiology Division Massachusetts General Hospital Harvard Medical School Boston MA.
Lauck SB; Centre for Heart Valve Innovation St. Paul's Hospital University of British Columbia Vancouver British Columbia Canada.
Peschin S; Alliance for Aging Research Washington DC.
Sachdev V; National Heart, Lung, and Blood Institute of the National Institutes of Health, Bethesda MD.
Tate LM; Heart Valve Voice US Washington DC.
Wasfy JH; Cardiology Division Massachusetts General Hospital Harvard Medical School Boston MA.
Otto CM; Cardiovascular Division University of Washington Seattle WA.
Pokaż więcej
Źródło :
Journal of the American Heart Association [J Am Heart Assoc] 2020 May 05; Vol. 9 (9), pp. e015975. Date of Electronic Publication: 2020 Apr 24.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
Język :
Imprint Name(s) :
Original Publication: Oxford : Wiley-Blackwell
MeSH Terms :
Cardiac Catheterization*/adverse effects
Citizen Science*
Health Priorities*
Heart Valve Prosthesis Implantation*/adverse effects
Patient Participation*
Patient-Centered Care*
Research Design*
Heart Valve Diseases/*surgery
Decision Making, Shared ; Health Services Accessibility ; Heart Valve Diseases/diagnosis ; Heart Valve Diseases/physiopathology ; Humans ; National Heart, Lung, and Blood Institute (U.S.) ; Perioperative Care ; Postoperative Complications/etiology ; Postoperative Complications/therapy ; Stakeholder Participation ; Treatment Outcome ; United States
References :
N Engl J Med. 2018 Dec 13;379(24):2307-2318. (PMID: 30280640)
J Am Coll Cardiol. 2017 Mar 28;69(12):1523-1532. (PMID: 28335833)
Med Decis Making. 2018 Jan;38(1):44-55. (PMID: 28806143)
Patient Educ Couns. 2014 Nov;97(2):158-64. (PMID: 25175366)
JACC Cardiovasc Interv. 2018 Sep 10;11(17):1759-1771. (PMID: 30190065)
Nat Rev Dis Primers. 2016 Mar 03;2:16006. (PMID: 27188578)
J Am Heart Assoc. 2019 Nov 5;8(21):e014020. (PMID: 31665959)
BMJ Qual Saf. 2018 May;27(5):380-388. (PMID: 29269567)
Am J Cardiol. 2018 Aug 1;122(3):440-445. (PMID: 30201109)
Circulation. 2017 May 16;135(20):1951-1955. (PMID: 28507250)
J Eval Clin Pract. 2013 Oct;19(5):727-33. (PMID: 21410844)
N Engl J Med. 2005 Jun 9;352(23):2389-97. (PMID: 15944423)
J Am Heart Assoc. 2014 May 28;3(3):e000879. (PMID: 24870936)
Qual Health Res. 2019 Mar;29(4):568-576. (PMID: 28985686)
Am J Cardiol. 2013 Oct 1;112(7):991-5. (PMID: 23791013)
J Am Coll Cardiol. 2014 Dec 23;64(24):2706-2707. (PMID: 25524348)
J Am Coll Cardiol. 2019 May 7;73(17):2150-2162. (PMID: 31047003)
Nat Rev Cardiol. 2015 Dec;12(12):689-710. (PMID: 26483167)
JACC Cardiovasc Imaging. 2019 Apr;12(4):751-752. (PMID: 30121267)
J Am Coll Cardiol. 2015 Mar 24;65(11):1078-88. (PMID: 25790878)
Circ Cardiovasc Qual Outcomes. 2018 Oct;11(10):e004693. (PMID: 30354575)
Circulation. 2014 Jun 10;129(23):e521-643. (PMID: 24589853)
Circulation. 2009 Aug 18;120(7):577-84. (PMID: 19652094)
J Am Heart Assoc. 2020 May 5;9(9):e015975. (PMID: 32326818)
J Am Coll Cardiol. 2017 Mar 14;69(10):1215-1230. (PMID: 27956264)
PLoS One. 2012;7(11):e49827. (PMID: 23226223)
Am Heart J. 2016 Mar;173:86-93. (PMID: 26920600)
BMJ. 2008 Sep 29;337:a1655. (PMID: 18824488)
Heart. 2015 Sep;101(18):1456-62. (PMID: 25678498)
JACC Cardiovasc Imaging. 2017 Feb;10(2):185-202. (PMID: 28183438)
Eur Heart J. 2017 Sep 21;38(36):2739-2791. (PMID: 28886619)
Eur Heart J. 2016 Dec 14;37(47):3515-3522. (PMID: 27354049)
Heart. 2018 Nov;104(22):1832-1835. (PMID: 29794244)
JAMA Intern Med. 2019 May 20;:. (PMID: 31107523)
Eur Heart J Cardiovasc Imaging. 2017 Jan;18(1):70-78. (PMID: 26896413)
Eur Heart J. 2013 Jun;34(21):1597-606. (PMID: 23293304)
JACC Cardiovasc Imaging. 2017 Nov;10(11):1320-1333. (PMID: 28017384)
J Am Coll Cardiol. 2019 Jan 29;73(3):340-374. (PMID: 30031107)
J Thorac Cardiovasc Surg. 2014 Sep;148(3):995-1003; discussion 1003-4. (PMID: 25048633)
JAMA Cardiol. 2020 Jan 29;:. (PMID: 31995126)
Patient Educ Couns. 2017 Jun;100(6):1136-1143. (PMID: 28110953)
J Thorac Cardiovasc Surg. 2012 Aug;144(2):308-12. (PMID: 22698565)
JAMA Intern Med. 2018 Apr 01;178(4):520-529. (PMID: 29482225)
JACC Cardiovasc Interv. 2014 Jun;7(6):662-73. (PMID: 24947722)
Can J Cardiol. 2018 Feb;34(2):117-124. (PMID: 29289400)
J Am Coll Cardiol. 2018 Dec 18;72(24):3225-3227. (PMID: 30545459)
BMJ. 2018 Dec 6;363:k5147. (PMID: 30522999)
JACC Cardiovasc Interv. 2019 Mar 11;12(5):459-469. (PMID: 30846085)
JAMA. 2014 Mar 12;311(10):1013-4. (PMID: 24618959)
Circ Cardiovasc Qual Outcomes. 2014 Jul;7(4):620-6. (PMID: 24867916)
Circulation. 2016 Aug 9;134(6):455-68. (PMID: 27486164)
Health Expect. 2015 Aug;18(4):542-61. (PMID: 23451939)
Circ Cardiovasc Imaging. 2018 Mar;11(3):e007146. (PMID: 29555836)
N Engl J Med. 2019 Jun 27;380(26):2541-2550. (PMID: 30946551)
JACC Cardiovasc Imaging. 2019 Aug;12(8 Pt 1):1474-1483. (PMID: 30448117)
J Am Coll Cardiol. 2017 Aug 8;70(6):689-700. (PMID: 28693934)
JAMA. 2018 Dec 4;320(21):2231-2241. (PMID: 30512100)
J Am Coll Cardiol. 2014 Apr 22;63(15):1522-8. (PMID: 24561149)
N Engl J Med. 2020 Jan 9;382(2):120-129. (PMID: 31733180)
Circulation. 2019 Jul 2;140(1):e69-e89. (PMID: 31082266)
BMJ. 2017 Apr 18;357:j1744. (PMID: 28420639)
Eur Heart J Cardiovasc Imaging. 2017 Feb;18(2):138-144. (PMID: 27520802)
Am Heart J. 2019 Sep;215:139-146. (PMID: 31325772)
Ann Fam Med. 2016 Mar;14(2):133-40. (PMID: 26951588)
J Am Coll Cardiol. 2011 Aug 2;58(6):570-6. (PMID: 21798417)
Circulation. 2015 Dec 1;132(22):e292-7. (PMID: 26621646)
JAMA Cardiol. 2019 Dec 1;4(12):1250-1259. (PMID: 31642866)
Circulation. 2010 Jan 19;121(2):306-14. (PMID: 20048204)
J Am Coll Cardiol. 2018 Feb 27;71(8):860-871. (PMID: 29471937)
JAMA Cardiol. 2018 Nov 1;3(11):1060-1068. (PMID: 30285058)
Ann Thorac Surg. 2013 Oct;96(4):1367-1373. (PMID: 23915585)
JACC Cardiovasc Interv. 2014 Jul;7(7):707-16. (PMID: 24954571)
Am J Cardiol. 2017 Aug 1;120(3):450-455. (PMID: 28583680)
J Am Coll Cardiol. 2016 Oct 25;68(17):1868-1877. (PMID: 27765189)
Circ Cardiovasc Imaging. 2017 Aug;10(8):. (PMID: 28774932)
Circulation. 2017 Jun 20;135(25):e1159-e1195. (PMID: 28298458)
Circ Cardiovasc Imaging. 2017 Jul;10(7):. (PMID: 28701528)
J Am Coll Cardiol. 2019 May 28;73(20):2609-2635. (PMID: 31010719)
BMJ. 2012 Nov 08;345:e6572. (PMID: 23137819)
Cochrane Database Syst Rev. 2017 Apr 12;4:CD001431. (PMID: 28402085)
JAMA. 2019 Jul 2;322(1):25-26. (PMID: 31002337)
Acad Med. 2014 Sep;89(9):1245-51. (PMID: 24979285)
Contributed Indexing :
Keywords: aortic valve*; heart valve*; heart valve surgery*; mitral valve*; patient‐centered care*; shared decision making*; transcatheter valve implantation*
Entry Date(s) :
Date Created: 20200425 Date Completed: 20210310 Latest Revision: 20210310
Update Code :
PubMed Central ID :
Czasopismo naukowe
Over the past decade, the field of valvular heart disease (VHD) has rapidly transformed, largely as a result of the development and improvement of less invasive transcatheter approaches to valve repair or replacement. This transformation has been supported by numerous well-designed randomized trials, but they have centered almost entirely on devices and procedures. Outside this scope of focus, however, myriad aspects of therapy and management for patients with VHD have either no guidelines or recommendations based only on expert opinion and observational studies. Further, research in VHD has often failed to engage patients to inform study design and identify research questions of greatest importance and relevance from a patient perspective. Accordingly, the National Heart, Lung, and Blood Institute convened a Working Group on Patient-Centered Research in Valvular Heart Disease, composed of clinician and research experts and patient advocacy experts to identify gaps and barriers to research in VHD and identify research priorities. While recognizing that important research remains to be done to test the safety and efficacy of devices and procedures to treat VHD, we intentionally focused less attention on these areas of research as they are more commonly pursued and supported by industry. Herein, we present the patient-centered research gaps, barriers, and priorities in VHD and organized our report according to the "patient journey," including access to care, screening and diagnosis, preprocedure therapy and management, decision making when a procedure is contemplated (clinician and patient perspectives), and postprocedure therapy and management. It is hoped that this report will foster collaboration among diverse stakeholders and highlight for funding bodies the pressing patient-centered research gaps, opportunities, and priorities in VHD in order to produce impactful patient-centered research that will inform and improve patient-centered policy and care.

Ta witryna wykorzystuje pliki cookies do przechowywania informacji na Twoim komputerze. Pliki cookies stosujemy w celu świadczenia usług na najwyższym poziomie, w tym w sposób dostosowany do indywidualnych potrzeb. Korzystanie z witryny bez zmiany ustawień dotyczących cookies oznacza, że będą one zamieszczane w Twoim komputerze. W każdym momencie możesz dokonać zmiany ustawień dotyczących cookies